Thursday, July 26, 2012

I did it! I totally did it! I am so proud of myself!! (plus a little medical update)

I did it!!! I am SO proud of myself.

When the Humira was delivered to my desk this morning at work, I thought for sure I was going to vomit and then my second thought was "I can NOT do this!"

Well, guess what?!?!?!

I did it! I gave myself ALL FOUR injections. I did it! and honestly, it didn't even really hurt.

I do have 4 small raised areas on my belly now, but its done! in 2 weeks, I will do 2 more injections, then I will do 1 every other week for at least a year.

According to my GI specialist, I probably will not start feeling too many side effects of the drug or the tearing down on my immune system until after the next dose in 2 weeks.
Hopefully I will be one of those people that don't experience any side effects. (crossing my fingers!)

Thank you for all of your continued prayers and please please keep them coming for us!!!

Wednesday, July 18, 2012

and it begins.....

Ben and I met with my GI specialist yesterday to discuss the upcoming steps/treatment options, etc.

I will be trying to go somewhat Gluten-Free and I will be getting a ton more blood work done soon.

My GI’s assistant is starting the insurance process of getting the Humira for me… She said it normally takes between 7 and 10 days to get approved. Once that is complete…the specialist pharmacy will overnight the meds to me on dry ice. The day it arrives, I immediately go to the GI’s office and they will administer the shots/teach me how to give myself shots.

The first day, I will get 4 back-to-back shots.
2 weeks later, I will give myself 2 shots.
2 weeks after that, 1 shot.
From there, I will give myself 1 shot every other week.

They said because I have moderate to severe Crohn’s that I will be doing this for a minimum of 2 years, but possibly for the rest of my life.

The assistant has given me some info to research and some avenues to go down to help offset my out of pocket price as this drug is about $3k-6k per month without insurance…..not sure how much the insurance will cover yet.

Anyway, Ben and myself would really appreciate some prayers right now.

Monday, July 16, 2012

a quick update on my health

So the last few weeks and months have been really tough health-wise for me. I have been on the supplements, prednisone, and anti-inflammatory pills for a while. I think at last count, I am taking 28 pills a day. Fun times.

However, this combination or type of pills or something, isn't helping to get me in remission. So, I called my GI specialists office today and requested that they start the insurance pre-approval process for Humira.

Humira is an immuno-suppressant. With this, I will have to give myself injections. I am extremely nervous about this, but honestly, I just want to FEEL BETTER. So if that means that I have to become a hermit (work and home only) because I will have no immune system, then so be it.

I am tired of feeling like crap. (pun intended. lol)

I would like to ask that my family and friends be supportive (and patient with me) in this next step in the journey I am about to take with Crohn's disease and auto immune disorder.

I would also greatly like to ask for prayers. For my health, for my strength, for my sanity, for my marriage, for my husband, for my mom and all of my close support system.