What a crazy few weeks its been.....

The last few weeks have been trying to say the least.

As mentioned in the before post, I was getting a sinus infection within 1-2 after each injection of Humira. My GI and I decided it was time to stop the Humira.

We also decided that I needed to come off the Prednisone (steroids). So on Thursday, October 25th (? I think that date is right), I started taking 5 mg of Prednisone every other day. I will continue this for 2 weeks and then not take anymore.

While weaning off the Prednisone, he placed me on another type of steroid called Entocort. This steroid is specifically for the gut.

I can say the withdrawals from the Prednisone are not fun and can last weeks. Right now, I have a low grade fever; go from cold to hot constantly; my bones all over my body hurt; headache; shakes; tired as all get out.

I had my ultrasound of my abdomen on Wednesday, Oct 31st. I am required to get these every 6 months to monitor the cyst on my liver and left kidney. I should know the results of these tomorrow.

On that same day, I also visited an ENT (Ear, Nose, and Throat) Specialist. He came to the conclusion that my body is resistant to the antibiotics. So while it is fighting the sinus infections, it is never fully getting rid of them. I have been diagnosed with a Chronic Sinus Infection.

Tomorrow, Nov 5th, I will be having a CT Scan of my sinus cavities. As of right now, I am probably looking at having sinus surgery in the near future. While this is not something I would prefer to do, I want to feel better.

If you don't mind, please keep me in your prayers over the next few weeks.

At least we tried....

I had my monthly GI visit today. And after repeatedly getting sinus infections, my GI and I decided that it would be best to stop my Humira injections.

This sucks because the Humira is actually doing its job for my Crohn's. However, because it greatly suppresses my immune system, infection takes over.

He is putting me on 6mg/daily of Entocort (sp?) and I only have 2 more weeks worth of weaning off of the Prednisone. Entocort is supposed to have WAY less side effects than the Prednisone.

I will also continue with my Pentesa (anti-inflammatory) at 3000mg/daily.

Please keep me in your prayers!

10 Things you probably don't know about me and living with Crohn's disease

I thought I would make a list of things that most people don't know about me and my Crohn's disease.

1. I have a low grade fever about 5 out of 7 days of the week. Normally it starts in the late afternoon, early evening. My eyes will start burning and my energy is instantly gone.

2. I am achy most days as well. You know how your body aches when you are feverish? yeah, that's what I feel a lot.

3. I inject myself with Humira every other Sunday morning. For that whole day, I just mainly sleep as it is impossible to keep my eyes open.

4. I miss having a social life, but I don't miss those people that were just my party friends. Turns out, I don't hear from them at all now that I don't party.

5. I take 28 pills a day. That is 28 between my prescriptions and supplements.

6. My potassium sometimes gets so low that I get intense cramps in my legs and feet, that I have to try to walk off. most of the time this happens in the middle of the night and results in crying. Every time I go to the ER, my potassium is so low, they make me take a giant horse pill *barf*

7. I don't sleep at night, which means during the week, I get hardly any sleep. On average during the week, I sleep about 2-4 hours a night....and that is after taking sleep aids. I take many naps during the day on the weekend.

8. Due to my steroids (Prednisone), and the increasing/decreasing required to find a good dosage for me, I have gained 21 pounds in 2 months. NOT COOL!

9. I now know more about my body, more about side effects of meds, more about Crohn's than I really ever realized I could know.

10. At the age of 34, I feel most days like I have been hit by a truck, but I keep moving along. I have some really bad days and some really good days though.

Tell me about YOU!

I borrowed this from Heather, who I think also borrowed. I thought I what a cute way to learn more about my readers.

This is quick and fun...for me to read. Here's what you do, leave me a comment and let me know the following!!

1. Who are you?

2. Do you blog, too? Leave me your link! I want to follow you! (if I don't already)

3. Do you remember how you found my blog? A link-up? Another blog?

4. How long have you been reading?

5. What keeps you coming back to my blog?

6. What would you like to see me blog about more?

7. What is something we have in common?

8. Tell me a fun fact about yourself!

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